Not happy :(

[eddiesolo]

As some of you know I am disabled and struggle with arthritis in my back, FM, eye problems and muscle issues. I do try and get on with stuff as best as I can and was really cheesed off to have to pack in my job 2 years ago now...in fact I kept all my work gear for over three months hoping to go back. I have struggled with my weight for many years but of course this past few years it has increased-cannot lie. The past 12 months I have been having restless leg syndrome, in fact it gets so bad that my wife awakens, cannot get back to sleep and has to go downstairs. I also am suffering from severe night sweats, awakening drenched and smelly with a vinegar smell, my wife is stripping the beds almost everyday.

I finally had enough and went to see the Dr's. She had me wait until the nurse was free and I had 5 samples of blood taken! I have also got to go for a chest X-ray on Wednesday. I also got a letter for me to arrange an appointment for one of those sleep clinics-she thinks I have sleep apnea-not happy about going but I am so knackered and my wife is knackered we just cannot function straight. Today at Collectormania was exhausting but I enjoyed it, was a nice break, although I can hardly move now lol.

I know my many medications can cause problems and sweats but this is getting to the point that I do not want to go to bed, so am more tired. I know my weight is one issue, depression and a lack of exercise haven't helped matters, so hoping to maybe try and sort this but just want to get back to some sort of normality. Cannot be bothered to really go into the mancave and do any modelling, just sit there and come out after 20 mins.

Si...having a moan lol.

[Ian M]

I feel for you Si. I have worn out joints in my knees, elbows and shoulders and my back is not much better. I to get restless leg syndrome. So I know a bit about how you are feeling.

I look forward to the day I can stop work so I can do things as and when I like and not HAVE to be fit for duty all day every day.

As for the weight, it is a downhill spiral, Its not as if I am roaring to go and do lots of exercise as I doubt you are either.

I hope that your Dr. gets you sorted. Mine tends to deal with it with the phrase; "Well you are not 18 any longer"..... Fat help-

Ian M

[eddiesolo]

I feel for you Si. I have worn out joints in my knees, elbows and shoulders and my back is not much better. I to get restless leg syndrome. So I know a bit about how you are feeling.I look forward to the day I can stop work so I can do things as and when I like and not HAVE to be fit for duty all day every day.

As for the weight, it is a downhill spiral, Its not as if I am roaring to go and do lots of exercise as I doubt you are either.

I hope that your Dr. gets you sorted. Mine tends to deal with it with the phrase; "Well you are not 18 any longer"..... Fat help-

Ian M

Sounds like you are struggling too Ian, I know certain lifestyle changes need to happen, but getting them to work is proving harder and harder. As you say it is difficult to get motivated when you feel so knackered and in pain or doped up on painkillers. We try our best I suppose.

Si

[Guest]

I feel for you Si, I have arthritis in both my knees had our granddaughter this weekend and I could hardly get on the floor to play with her and when I did it took 5mins of pain to get up, I don't know how long I can keep my job on, luckily I am pretty much left to do what I want (there used to be 3 gardeners and 4 handymen) now there's just me, and I have battled depression so I know where you're coming from. Of course we all have good and bad days, I hope your days turn round soon to good ones, keep your chin up mate.

[Alan 45]

I'm sorry to here both of you are having troubles with your health , I know how hard it can be to keep active when you have ailments that make it difficult to get about , I care for my wife who has troubles and it's difficult to get her motivated if she has a bad day

So I know what it's like when ailments and medication conspire to make you less active

I hope things work out for the both of you

[Guest]

Hell fire Si. Understatement that is not good. What can I say. Platitudes are just words and obviously cannot express the distress.

Well if it was me and Si you may say I have already done that ! I would be knocking on all doors and asking my physician to refer me and then when I met the next bloke up the ladder also refer me to the next bloke. And I would not stop until I got to some one who knows what they are doing.

The majority of people in this world work on systems. Hand downs what you do ifs. This pill plus this pill. No imagination. So knock on those doors Si. Just knock.

Example. My doc gave me pills for high blood pressure. Went to see him. Told him that I had poor circulation through my feet. Turned out to be the toes. So he sat there. He said that the answer was some drug which means you have to go for tests every month. He sat there for a time. Grabbed my notes and read. Now he said an experiment. We will change one of your blood pressure pills to another which relaxes the arteries. Multi tasking. Result.

So do not give up Si. Knock on those doors until somebody you meet, not necessarily has some affective treatment, who can give you imaginative help and alleviation of your difficulties.

I am not one for giving up and I hope you are not as well Si. Do not for get that you and your physician, who ever they may be and at what level, are a team. Sometimes team members have to be kicked in the bum that includes yourself. So get out there SI.

Laurie

[Guest]

I feel for you Si & anyone else who is suffering. I can put up with the troubles that age brings, but depression agrophobia anxiety attacks insomnia .... they're my ones that p me off!

[Guest]

Im sorry to hear about your health problems Si. I'm fortunate to be in fairly good health which I'm thankful for. Like laurie has said, keep battling on until the doctors can get you sorted!!!

Cheers, Andrew

[Guest]

I hope it's just a passing phase and that you get back into a regular sleep pattern. You have my sympathies.

[Guest]

Feel for you guys, both my wife and I were tested for sleep apnea, trying to sleep with all those wires on was ridiculous and of course we were both cleared I wonder if it is a fashion sometimes every where you looked for a while here some one was spouting sleep apnea, eventually the Doc. agreed that the bouts of itchy skin, aches and feeling tired even when I slept well were probably psychosomatic and down to the problems that we had when we moved here plus my wife and I still do not have the relationship we had, now thinks it would help to talk to someone, I said I do, I talk to myself! lol. anyway guys I really sympathise my modelling is what keeps me on an even keel cant imagine what I would do without it.

[Guest]

I wondered why I hadn't seen you down at the pond last time home Si. Now it makes a bit more sense. I think of all the things that can go wrong not being able to sleep has to be right up there at the top of the pile of things I couldn't cope with. Everything else can be dealt with if you get a good nights sleep but everything becomes so much worse if you can't. I hope you can stabilise the sleep situation so everything else will start to head in the right direction but until then feel free to vent here if it helps. It would probably surprise us all to discover just how many of us share similar ailments but just haven't shared them.

All credit to you for having the courage to share it here, and equal credit to the support that has since been shared.

[Guest]

HI Si good god man as far as iam concerned moan away mate your entitled, I am sorry though to hear that your health is not good, like Laurie said keep going to the doctor until you get what you need from them. I cannot imagine what it must be like for you and you wife right now, keep on fighting and things will get better and like Richard stated you have a lot of guts for sharing this with us, all the best from the clan noble.

scott

[Guest]

I know I'm a stranger on this site but can recommend a simple thing for the RLS. It's not a cure or a solution but man it helped me!! Either go the whole hog and raise the height of the bed at the end your feet are at (a block under each leg for example) or simply put a pillow or 2 under your feet at night. Gravity takes the blood and fluids away from your legs and frees up your muscles. I'm only 32 and have had 3 pulmonary embolisms (clot in the lung) in the past 5 years! My circulation was really affected by damage to the veins in my left leg. Was suffering restless legs and severe cramps on a nightly basis. So severe were the cramps that I passed out with the pain on more than one occasion! Iv been a long distance driver for 10 years so no prizes for guessing why I developed blood clots. Being immobile for 8 hours a night and sleeping all day is a bad recipe for circulation. As for the mental side of things I had to stop driving artics for 6 months while I battled depression and anxiety attacks but the doctors always put you on the right track! Talking to people is a great medicine for mental health issues! So is keeping your mind busy (for example building models ;-) lol)

Keep fighting the good fight sir!!

[ojays]

Know exactly what your going through Si and can sympathise, you have mentioned almost the same as what my wife is suffering from, Depression, FM, arthritis in most joints, Asthma, COPD, frozen shoulder (both sides) constant pain, even though she is on morphine patches, among many other meds. She only sleeps for about 3 hrs a night, and even that is in an agitated state, so I sleep on the sofa.

This has been going on since 2009, and repeated changes of medication don't really alleviate the symptoms.

She hardly ever complains, however I find it difficult that apart from being her carer, I can't take away the pain.

My minor problems aren't worth mentioning, as hearing of people like you, and seeing my wife suffer, I'm in perfect health.

Feel free to vent on here, we've all got an ear for you and any others that need to shout at the world. (if you get my meaning)

Modelling is my escape, and checking in on this forum, when I can't get my modelling gear out.

Regards

Gregg

[Guest]

I'm sorry Si, I feel for you.

PS: sorry by don't write more, is a so complicated thread for me...