Ouch! you are properly going through Hell!
Hopefully the law of averages will apply and you have a better outcome soon!
Miko
Hopefully the law of averages will apply and you have a better outcome soon!
Miko
A New Arthritis Hell
- Thread starter davecov
- Start date
Things are definitely not going well for you at the moment Dave. You are certainly due a change of fortune. I really hope you get some better news soon.
Sorry to hear this mate, though I'm sure you'll triumph with the willpower you've displayed to now!
Steve
Steve
At last I can report a bit of progress in that I finally had a CT Scan (colonography) yesterday. After two failed colonoscopies already in the last couple of months, it was a relief to finally get a procedure done. I now have to wait up to ten days to get the results. Hopefully, that will reveal just what is going on inside and they can untangle the web of symptoms caused by a host of illnesses I am suffering. The main thing is that I will know one way or another if there is a tumour, polyps, bleeding within a body cavity or nothing at all.
I was also told this week that I may have hypothyroidism. A blood sample was taken for a T3 (Triiodothyronine) test and while I am just in the lower end of the normal range, I will have another T3 test later this year. As for my RA, the flare ups are reducing during the day but night time is still a problem. Still, things are a big improvement on how I was when it was diagnosed last August. I am still waiting for an end to my anaemia so that I can start on the Sulphazalazine immuno-suppressors.
I now have the luxury of having just over two weeks without needing a visit to my health centre or the hospital. Aileen and I are going away to Dunkeld next week for a break. It is a place we have been to a few times and by the time I get back home again I should have the results of the CT scan.
Dave
I was also told this week that I may have hypothyroidism. A blood sample was taken for a T3 (Triiodothyronine) test and while I am just in the lower end of the normal range, I will have another T3 test later this year. As for my RA, the flare ups are reducing during the day but night time is still a problem. Still, things are a big improvement on how I was when it was diagnosed last August. I am still waiting for an end to my anaemia so that I can start on the Sulphazalazine immuno-suppressors.
I now have the luxury of having just over two weeks without needing a visit to my health centre or the hospital. Aileen and I are going away to Dunkeld next week for a break. It is a place we have been to a few times and by the time I get back home again I should have the results of the CT scan.
Dave
Mixed news Dave but things do seem to be moving in the right direction. Once you get a diagnosis the doctors can introduce a treatment. Enjoy your break, it will do you good and you deserve it
SO Very sorry jen an i are to hear of all your probs Dave an we send best wishes to you sir for a recovery soon an enjoy yourself out with your lady freind next week
jen an chrisb
jen an chrisb
...enjoy yourself with your Lady Friend ... disgraceful comment Sirrah! Let's not forget the ethos of this site!
Steve
Steve
I missed the post about your (failed) colonoscopy. Having been through the process, and a colonography, you have my sympathy.
I have diverticular desease and there is something else going on that they aren't clear on, but they have been unable to reach the area of concern (apologies to the squeamish)
Have a great time on your break and fingers crossed for the results.
I have diverticular desease and there is something else going on that they aren't clear on, but they have been unable to reach the area of concern (apologies to the squeamish)
Have a great time on your break and fingers crossed for the results.
That’s good news Dave. Glad you are finally getting some progress. Enjoy your break and try not to think about this too much.
It has been two and a half weeks since I had a colonography and I have been waiting for the results to arrive. I was in my village health centre this morning giving yet another blood sample and collecting more tablets, so I asked if my results were in. They were not, which was disappointing.
However, tonight my GP phoned to say that he had found out my results by logging into the hospital system. According to the results, there is nothing of concern down below, with "no lumps, bumps or tumours". To say that is a relief is bit of an understatement and although I had always hoped that I would get the all-clear from the colonography, there was a dark cloud hanging over everything I did. Having said that, my GP and I are still waiting for the official news from the hospital consultant.
I am still awaiting the blood results from the hospital's haematologist as well which hopefully will reveal the cause of the anaemia that I am suffering. Hopefully, once the anaemia is dealt with, I can finally start taking the Sulphasalazine immuno-suppressors for my Rheumatoid Arthritis.
Some good news - for months I had been on Naproxen before my upper endoscopy eight weeks ago, but that caused some irritation on my stomach lining so my GP replaced it with Etoricoxib. He says that I no longer need to take that daily and we are going to see if I can do without it completely in due course.
Finally, I have a three-monthly Type 2 Diabetes review this Thursday and as I have been in remission for almost six months now, it is no longer a worry for me. I will have another review in October.
All in all, good news but I still have the big problem of dealing with lots of builds that have stalled over the past few weeks! Mind you, I know that I am not alone in having that particular problem!
Dave
However, tonight my GP phoned to say that he had found out my results by logging into the hospital system. According to the results, there is nothing of concern down below, with "no lumps, bumps or tumours". To say that is a relief is bit of an understatement and although I had always hoped that I would get the all-clear from the colonography, there was a dark cloud hanging over everything I did. Having said that, my GP and I are still waiting for the official news from the hospital consultant.
I am still awaiting the blood results from the hospital's haematologist as well which hopefully will reveal the cause of the anaemia that I am suffering. Hopefully, once the anaemia is dealt with, I can finally start taking the Sulphasalazine immuno-suppressors for my Rheumatoid Arthritis.
Some good news - for months I had been on Naproxen before my upper endoscopy eight weeks ago, but that caused some irritation on my stomach lining so my GP replaced it with Etoricoxib. He says that I no longer need to take that daily and we are going to see if I can do without it completely in due course.
Finally, I have a three-monthly Type 2 Diabetes review this Thursday and as I have been in remission for almost six months now, it is no longer a worry for me. I will have another review in October.
All in all, good news but I still have the big problem of dealing with lots of builds that have stalled over the past few weeks! Mind you, I know that I am not alone in having that particular problem!
Dave
The news is generally good, Dave, which must lessen your worry and stress. The constant waiting for results etc must be horrible.
As for the stalled builds. They'll still be there when all this is sorted. Then you'll have to knuckle down :smiling:
As for the stalled builds. They'll still be there when all this is sorted. Then you'll have to knuckle down :smiling:
Excellent news Dave. Soon be on the big yelow horse tablets then 
Wednesday morning I got the results of Tuesday's blood sample and according to my GP, my blood is "stable but improving". So, perhaps one day I won't be anaemic!
As for my diabetes review yesterday, I got a call from the health centre this morning and my HbA1c remains at 38 (5.6%) and it has been at that level for the past five months. At least that has been stable too. It had been planned that I would come off Metformin altogether, shortly, but I have been asked to remain on it until the next review in December.
I had been meaning to get back to my modelling bench by now but the Rheumatoid Arthritis is too bad for such fiddly work. I might have to content myself with mowing thegrass jungle this afternoon instead - providing conditions are not too damp. It will be the first cut of the year so there is a lot to do and I will probably have to mow it over three sessions.
Dave
As for my diabetes review yesterday, I got a call from the health centre this morning and my HbA1c remains at 38 (5.6%) and it has been at that level for the past five months. At least that has been stable too. It had been planned that I would come off Metformin altogether, shortly, but I have been asked to remain on it until the next review in December.
I had been meaning to get back to my modelling bench by now but the Rheumatoid Arthritis is too bad for such fiddly work. I might have to content myself with mowing the
Dave
I'm taking the first two paragraphs as a positive, which is good!
As for gardening, it's one mans delight and a chore to another
Miko
Unfortunately (or fortunately, depending on your point of view), we have just had a huge downpour here with thunder and lightning so gardening is off for today! :smiling:
Dave
Dave
I had the same weather problem 2 weeks ago and when I could mow the lawn the grass was almost knee high: first passage with blade at mid height and second at the lowest. Positive news: the scales showed I lost more than 1 kg. (2.2 lbs) in an afternoon.
Hope weather will improve soon as well as your arthritis and general health conditions. :thumb2:
Hope weather will improve soon as well as your arthritis and general health conditions. :thumb2:
Yes some days in the late Summer it really does but the fresh Veggies are worth the effort.
Dave so sorry to hear about this but looks like you salvaged some good news. I had to quit the small fiddly models on 1/72 scale and go with the less parts and simple builds. I still get the satisfaction out of building these types of 1/72 models. I hope you get better your in my prayers
Cor blimey Dave, reading your ailments certainly brings it to person how lucky they are. I have told my wife I'm not going to moan about my aching thumb joint anymore!!!
I sincerely hope your good news out weighs the bad. At least you appear to be keeping on top of it.
I sincerely hope your good news out weighs the bad. At least you appear to be keeping on top of it.
Another update on this saga but there may be light at the end of the tunnel. Last week I got a letter from the hospital giving me the official all-clear after the Colonography and there will be no follow-up. Good news there. Today, my GP phoned me to say that the haematologist had finally got back to him after weeks of waiting. The haematologist confirmed that I am no longer anaemic! It looks like the change of diet and strong iron tablets have finally worked.
I asked my GP about the Sulphasalazine immuno-suppressors which I need to help with my Rheumatoid Arthritis but he said to wait until the results of my next fasting blood test which will be next week. Providing they are okay, he will approach the Rheumatology department at the hospital and discuss when I can start on the Sulphasalazine.
At last, I may finally be restarting on immuno-suppressors which was stopped last year due to an adverse affect. Sulphasalazine is a different one to then, so hopefully things will work out for the better. It cannot come too soon because I have been really struggling with my joints for weeks, especially my hands which has meant I have been unable to do any modelling for almost two months now.
Dave
I asked my GP about the Sulphasalazine immuno-suppressors which I need to help with my Rheumatoid Arthritis but he said to wait until the results of my next fasting blood test which will be next week. Providing they are okay, he will approach the Rheumatology department at the hospital and discuss when I can start on the Sulphasalazine.
At last, I may finally be restarting on immuno-suppressors which was stopped last year due to an adverse affect. Sulphasalazine is a different one to then, so hopefully things will work out for the better. It cannot come too soon because I have been really struggling with my joints for weeks, especially my hands which has meant I have been unable to do any modelling for almost two months now.
Dave
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