Health update.

[boatman]

YES Barry where ever i am out an about or like you in hos i like to be polite to people an patiecne to people as most people an like the docs an nurses are only tryin to help you an for that i would an am most gratefull as i think that how we should all behave as there is to much rudeness an poeple wanting to fight now what ever is up with the human race now ?
chrisb

[scottie3158]

I agree with your sentiments entirely.

[BattleshipBob]

I'll second that Paul

The staff were magnificent with mum, 100% care. Watching the nurses with the dementia patients was a joy, such care and understanding. Anyone who assaults them should be banned from hospital after a 2yr no early release jail spell. Me I'd let them play with a Tiger

[Tim Marlow]

On the ‘rude and obnoxious’ patient line. A story from my first night spent in A&E.

About 1am a doctor and two nurses came to my bay to see me. All looking very glum faced and miserable. They had been looking at my scans and consulting with Kings. They told me I had cancer which was not a surprise at that point. I just thanked them for being honest with me. But they were so glum and miserable when they left I just thought, that’s it, I will be dead in months.

For the next few hours I lay in bed reviewing my life, thinking about what I need to do and making peace with what I thought was happening, as far as I was concerned, that was it, my life was over.

Then at 7am I heard this horrible raspy loud voice in the corridor berating a nice young nurse who was just trying to help him. I was disgusted at what I heard and just got angry, if I could have stood up then I am sure that I would have intervened.

But, in my anger suddenly my mood changed. Why the hell should I just shuffle of this mortal coil and leave such arseholes behind, bugger this, I am not dying.

That was the turning point for me. So even these rude arseholes can have a positive effect.

Apologies for the language but in context I think its appropriate.

Fully agree with this. A real eye opener is to be in A & E late evening and early morning. By far the weirdest thing I think is those that come in bringing their whole family , grandparents, kids, mum and dad, etc. It’s not a family day out for gods sake. Mind you, hospital patients have got nothing on care home residents family members. My wife works in one, and the way they behave is appalling in the extreme. Demanding, arrogant and dictatorial doesn’t begin to describe it. My daughter works as a veterinary nurse, and animal owners are apparently just as bad.

[Guest]

Tim, I agree, some of the animal owners need a labotomy once in a while....
And Barry, if you see old raspy voice call him over, and tell him a few facts of his life....

[BarryW]

Still in bed, feeling is getting better in my legs but still very slowly. Just not getting enough physio, which is very frustrating. I really need to get out of bed. I do some leg exercises they suggested and others I have worked out and control over my floppy legs and feet is improving.

As for the cancer. I was given these very expensive injections and told that follow up injections had to be made 28 days later. Well, I was then transferred back to my local hospital and I discussed this with the Ward doctor and an oncology nurse. The injections were supposed to be given Friday but were not done. The drug, not surprisingly, is not held by the Trust and has to be specially ordered in. They failed to do so. An order was put in for the drug Monday.

Somebody somewhere cocked up and I am fuming and, for the first time, worried. I need to see an oncology specialist to find out what, if any, the implications are of this drug being given up to a week late.

The famous incompetence of NHS management strikes again.

[Jack L]

Still in bed, feeling is getting better in my legs but still very slowly. Just not getting enough physio, which is very frustrating. I really need to get out of bed. I do some leg exercises they suggested and others I have worked out and control over my floppy legs and feet is improving.

As for the cancer. I was given these very expensive injections and told that follow up injections had to be made 28 days later. Well, I was then transferred back to my local hospital and I discussed this with the Ward doctor and an oncology nurse. The injections were supposed to be given Friday but were not done. The drug, not surprisingly, is not held by the Trust and has to be specially ordered in. They failed to do so. An order was put in for the drug Monday.

Somebody somewhere cocked up and I am fuming and, for the first time, worried. I need to see an oncology specialist to find out what, if any, the implications are of this drug being given up to a week late.

The famous incompetence of NHS management strikes again.

Frustrating news about the injection!

In terms of the physio treatments, when my Mum was in hospital after a major stroke in her mid 40s, she had similar frustrations in that she could be doing much better (and be out much sooner), if she received more treatment. My Dad suggested to the staff that if they could show him the basics, he could do additional work with her during visiting hours. This started working so well that the nurses relaxed the official visiting hours for him so he could watch the proper physio sessions and then carry on with them himself. Is that something your partner or a family member might be willing/able to do? Of course the staff may not allow it, but it may be worth a try?

[boatman]

Still in bed, feeling is getting better in my legs but still very slowly. Just not getting enough physio, which is very frustrating. I really need to get out of bed. I do some leg exercises they suggested and others I have worked out and control over my floppy legs and feet is improving.

As for the cancer. I was given these very expensive injections and told that follow up injections had to be made 28 days later. Well, I was then transferred back to my local hospital and I discussed this with the Ward doctor and an oncology nurse. The injections were supposed to be given Friday but were not done. The drug, not surprisingly, is not held by the Trust and has to be specially ordered in. They failed to do so. An order was put in for the drug Monday.

Somebody somewhere cocked up and I am fuming and, for the first time, worried. I need to see an oncology specialist to find out what, if any, the implications are of this drug being given up to a week late.

The famous incompetence of NHS management strikes again.

OH Barry that is disscustin as you say someone doesn't seem to care tyical of how things are bein run now yes id be bloody :angry: angry its your health they are so suppoce to be takin care of hope you get them soon an hope thing work out ok for you sir an how long have you been in bed for now ?
jen an i are hopein for your recovery soon as im missin you on the forum building that lank ATB
FROM US to you sir
chris an jen

[Jim R]

Your frustration and anger is understandable. Organisational incompetence seems, sadly, to be the norm at the moment. I wish you all the best and sincerely hope things get sorted soon.

[PaulTRose]

Is the injection called ADT or Prostap?......it wont hurt being 7 to 10 days late.....not ideal but it will be ok....i had similar happen......you can have a triple dose that lasts 3 months which makes things easier.....have they said how long you are on it?

[dave]

Sorry to hear of the monumental ****-up. The more I hear of the state of the NHS from people still in the UK I despair.

[BarryW]

Is the injection called ADT or Prostap?......it wont hurt being 7 to 10 days late.....not ideal but it will be ok....i had similar happen......you can have a triple dose that lasts 3 months which makes things easier.....have they said how long you are on it?

No,‘it’s a very new treatment and a very expensive one apparently. So screwing it up like this could be a costly mistake.

The second dose not arrived yet and it has been modified apparently. I have demanded to see an oncologist to answer questions.

[BarryW]

OH Barry that is disscustin as you say someone doesn't seem to care tyical of how things are bein run now yes id be bloody :angry: angry its your health they are so suppoce to be takin care of hope you get them soon an hope thing work out ok for you sir an how long have you been in bed for now ?
jen an i are hopein for your recovery soon as im missin you on the forum building that lank ATB
FROM US to you sir
chris an jen

Hi Chris and Jan
In bed now nearly 7 weeks!
Very frustrating.

[BarryW]

Sorry to hear of the monumental ****-up. The more I hear of the state of the NHS from people still in the UK I despair.

What is so annoying is how good the front line staff are. It’s the organisation and incompetent managers letting it down.

[boatman]

What is so annoying is how good the front line staff are. It’s the organisation and incompetent managers letting it down.

Yes Barry throughly aggree with you as jen booked an appionitment for me to see a doc 3 wks ago an just out of the blue this morn there was a letter in post box sayin my app was moved to a later date an i dint know this till i got home from the docs an the recpition lady sayin an when i saw recepitioness in docs she said so an jen said well were here now for my apptintment an jen said you might have let us know earlier an said well we want the app now ASAP an yes they sqezzed me in as jen wont be messed about wow be differnt story if she treid to get me an app quickly but jen booked my app 3 wks ago oh dear whats happening

an Barry what are you doin to pass the time as 7 wks ? id be goin off my head as it was bad enough for me after bein on the floor for a month due to back trouble after my back injury at work
BEST WISHES FROM US BOTH TO you sir
chris an jen